About CAPriCORN

Who We Are

The Chicago Area Patient Centered Outcomes Research Network (CAPriCORN) is a partnership between healthcare and research institutions, patients, patient advocates, clinicians, community-based organizations (CBOs) and non-profits committed to enabling and delivering patient centered clinical research. CAPriCORN has been a member of PCORnet (a national network of many healthcare institutions that conduct patient-centered research) from the start (2014).

We connect expertise with the electronic health record data needed to answer critical health questions. The network is a truly collaborative space – we work together to ensure the integrity of our projects and the quality of our data. A Patient Community Advisory Committee (PCAC) has worked with CAPriCORN since its inception to elevate the patient voice in research.

Mission
Our mission is to develop, test, and implement clinical research in order to improve health care quality, health outcomes, and health equity for the diverse populations of Chicagoland and the surrounding states

Goals

Engage stakeholders in governance and research
Expand an analysis-ready, standardized data set while protecting privacy and data security
Embed clinical trials in network care delivery systems
Build public trust in research
Attract diverse users of network resources
Create a sustainable network

CAPriCORN is one of nine Clinical Research Networks (CRNs) supported by the National Patient Centered Clinical Research Network (PCORnet) that originated from the Patient-Centered Research Institute (PCORI).

Accelerating Patient-Centered Research that Answers Important Health Questions

Network Sites

Contributing strategic leadership, data, and/or data stewardship

Institution	Lead
AllianceChicago	Fred Rachman
Cook County Health	William Trick
Edward Hines Jr. VA Hospital and Jesse Brown VA Medical Center	Elizabeth Tarlov
Loyola Medicine	Frances Weaver
Ann & Robert H. Lurie Children’s Hospital of Chicago	Marc Rosenman
NorthShore University Health System	Stephen Wachtel
Northwestern Medicine*	Faraz Ahmad
Rush University Medical Center	Raj Shah
University of Chicago	David Meltzer
University of Illinois Hospital & Health Sciences System	Howard Gordon
Medical Research Analytics and Informatics Alliance	Nataliya Shurupova

*Lead site; Abel Kho is the principal investigator of the network

Central Team

Managing operational needs and serving as primary contacts for the network. We look forward to working with you.
Get in touch at CAPriCORNPMO@northwestern.edu.

Talia Canter

Research Study Coordinator

Katya Klyachko

Research Development Lead

Shelly Sital

Operations Liaison

Partners

Supporting the work of CAPriCORN

All Chicago Making Homelessness History
Alliance to End Homelessness in Suburban Cook County
The Chicago Community Trust
ASH Research Collaborative
Chicago Center for HIV Elimination
Pastors 4 PCOR
PaTH Clinical Data Research Network
Prometheus Research
Mid-South Clinical Data Research Networks
DePaul University
New York City Clinical Data Research Network
OneFlorida Clinical Data Research Network
Greater Plains Collaborative Clinical Data Research Network
Chicago Health IT Regional Extension Center
Health & Medicine Policy Research Group
Health eHeart Patient Powered Network
HealthCore-Anthem Research Network
Illinois Department of Public Health
Chicago Department of Public Health
Cook County Department of Public Health
Humana-HUMnet
Illinois Public Health Institute
Illinois Health and Hospital Association
Research Action for Health Network (REACHnet)
Mytrus
The Patient-Centered Network of Learning Health Systems
Patient-Centered Scalable National Network for Effectiveness Research
The Thapelo Institute, Inc.
Third Coast Center for AIDS Research
Westside Institute for Science and Education

What We Do

CAPriCORN’s mission is to develop, test, and implement policies and programs designed to improve health care quality, health outcomes, and health equity for the diverse populations of Chicagoland and beyond. We work closely with our Patient Community Advisory Committee (PCAC) to ensure priorities align with patient needs and goals.

Since 2014, CAPriCORN has worked to put in place the infrastructure and processes necessary to create data sets comprised of high-quality, de-duplicated patient information. CAPriCORN engages in sustainable, population-level patient-centered outcomes research.

The Homelessness Project at the scale realized would not have been possible without the CAPriCORN infrastructure. The infrastructure provided working relationships between major healthcare institutions in the city of Chicago, a standardized data model for efficient extraction and linkage, a process for performing de-identified data linkage, and an honest broker to link data without the possibility of re-identification.
‐ William Trick, MD, Cook County Health (CCH)

CAPriCORN is working to improve the health of patients and communities.

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