CAPriCORN's Response to COVID-19


Who We Are

The Chicago Area Patient Centered Outcomes Research Network (CAPriCORN) is a partnership between healthcare and research institutions, patients, patient advocates, clinicians, community-based organizations (CBOs) and non-profits committed to enabling and delivering patient centered clinical research. CAPriCORN has been a member of PCORnet (a national network of many healthcare institutions that conduct patient-centered research) since our founding in 2013.

We connect expertise with the electronic health record data needed to answer critical health questions. The network is a truly collaborative space – we work together to ensure the integrity of our projects and the quality of our data. A  Patient Community Advisory Committee (PCAC) has worked with CAPriCORN since its inception to elevate the patient voice in research.

Our mission is to develop, test, and implement clinical research in order to improve health care quality, health outcomes, and health equity for the diverse populations of Chicagoland and the surrounding states


CAPriCORN is one of nine Clinical Research Networks (CRNs) supported by the National Patient Centered Clinical Research Network (PCORnet) that originated from the Patient-Centered Research Institute (PCORI).

Accelerating Patient-Centered Research that Answers Important Health Questions

Network Sites

Contributing strategic leadership, data, and/or data stewardship

AllianceChicagoFred Rachman
Cook County HealthWilliam Trick
Edward Hines Jr. VA Hospital and Jesse Brown VA Medical CenterElizabeth Tarlov
Loyola MedicineFrances Weaver
Ann & Robert H. Lurie Children’s Hospital of ChicagoMarc Rosenman
NorthShore University Health SystemStephen Wachtel
Northwestern Medicine*Faraz Ahmad
Rush University Medical CenterRaj Shah
University of ChicagoDavid Meltzer
University of Illinois Hospital &  Health Sciences SystemHoward Gordon
Medical Research Analytics and Informatics AllianceNataliya Shurupova

*Lead site; Abel Kho is the principal investigator of the network

Central Team

Managing operational needs and serving as primary contacts for the network. We look forward to working with you.
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CAP partners


Supporting the work of CAPriCORN

  • All Chicago Making Homelessness History
  • Alliance to End Homelessness in Suburban Cook County
  • The Chicago Community Trust
  • ASH Research Collaborative
  • Chicago Center for HIV Elimination
  • Pastors 4 PCOR
  • PaTH Clinical Data Research Network
  • Prometheus Research
  • Mid-South Clinical Data Research Networks
  • DePaul University
  • New York City Clinical Data Research Network
  • OneFlorida Clinical Data Research Network
  • Greater Plains Collaborative Clinical Data Research Network
  • Chicago Health IT Regional Extension Center
  • Health & Medicine Policy Research Group
  • Health eHeart Patient Powered Network
  • HealthCore-Anthem Research Network
  • Illinois Department of Public Health
  • Chicago Department of Public Health
  • Cook County Department of Public Health
  • Humana-HUMnet
  • Illinois Public Health Institute
  • Illinois Health and Hospital Association
  • Research Action for Health Network (REACHnet)
  • Mytrus
  • The Patient-Centered Network of Learning Health Systems
  • Patient-Centered Scalable National Network for Effectiveness Research
  • The Thapelo Institute, Inc.
  • Third Coast Center for AIDS Research
  • Westside Institute for Science and Education

What We Do

CAPriCORN’s mission is to develop, test, and implement policies and programs designed to improve health care quality, health outcomes, and health equity for the diverse populations of Chicagoland and beyond.  We work closely with our Patient Community Advisory Committee (PCAC) to ensure priorities align with patient needs and goals.

Since 2014, CAPriCORN has worked to put in place the infrastructure and processes necessary to create data sets comprised of high-quality, de-duplicated patient information. CAPriCORN engages in sustainable, population-level patient-centered outcomes research.

By connecting data from many institutions to create a more complete picture of what affects health, CAPriCORN enables ambitious research that matters to patients.

‐ Abel Kho, MD, Principal Investigator, CAPriCORN

CAPriCORN is working to improve the health of patients and communities.

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