CAPriCORN's Response to COVID-19
The Chicago Area Patient Centered Outcomes Research Network (CAPriCORN) is a partnership between healthcare and research institutions, patients, patient advocates, clinicians, community-based organizations (CBOs) and non-profits committed to enabling and delivering patient centered clinical research. CAPriCORN has been a member of PCORnet (a national network of many healthcare institutions that conduct patient-centered research) since our founding in 2013.
We connect expertise with the electronic health record data needed to answer critical health questions. The network is a truly collaborative space – we work together to ensure the integrity of our projects and the quality of our data. A Patient Community Advisory Committee (PCAC) has worked with CAPriCORN since its inception to elevate the patient voice in research.
Our mission is to develop, test, and implement clinical research in order to improve health care quality, health outcomes, and health equity for the diverse populations of Chicagoland and the surrounding states
CAPriCORN is one of nine Clinical Research Networks (CRNs) supported by the National Patient Centered Clinical Research Network (PCORnet) that originated from the Patient-Centered Research Institute (PCORI).
Contributing strategic leadership, data, and/or data stewardship
|Cook County Health||William Trick|
|Edward Hines Jr. VA Hospital and Jesse Brown VA Medical Center||Elizabeth Tarlov|
|Loyola Medicine||Frances Weaver|
|Ann & Robert H. Lurie Children’s Hospital of Chicago||Marc Rosenman|
|NorthShore University Health System||Stephen Wachtel|
|Northwestern Medicine*||Faraz Ahmad|
|Rush University Medical Center||Raj Shah|
|University of Chicago||David Meltzer|
|University of Illinois Hospital & Health Sciences System||Howard Gordon|
|Medical Research Analytics and Informatics Alliance||Nataliya Shurupova|
*Lead site; Abel Kho is the principal investigator of the network
Supporting the work of CAPriCORN
CAPriCORN’s mission is to develop, test, and implement policies and programs designed to improve health care quality, health outcomes, and health equity for the diverse populations of Chicagoland and beyond. We work closely with our Patient Community Advisory Committee (PCAC) to ensure priorities align with patient needs and goals.
Since 2014, CAPriCORN has worked to put in place the infrastructure and processes necessary to create data sets comprised of high-quality, de-duplicated patient information. CAPriCORN engages in sustainable, population-level patient-centered outcomes research.
Safeguarding data and maintaining privacy are important to the success of CAPriCORN’s work. Health data specialists, privacy and security experts, patients, and community members are involved in every step of our Front Door process that makes data available to researchers.
CAPriCORN commits to the following data principles:
If you have any questions or would like to discuss CAPriCORN’s data principles, please email us at firstname.lastname@example.org or call (312) 503-7374.
‐ William Trick, MD, Cook County Health (CCH)
The Homelessness Project at the scale realized would not have been possible without the CAPriCORN infrastructure. The infrastructure provided working relationships between major healthcare institutions in the city of Chicago, a standardized data model for efficient extraction and linkage, a process for performing de-identified data linkage, and an honest broker to link data without the possibility of re-identification.
References in this website to any specific commercial products, process, service, manufacturer, or company does not constitute its endorsement or recommendation by the members of the Chicago Area Patient-Centered Outcomes Research Network (CAPriCORN).