Selected Publications

Stakeholder Engagement Infrastructure to Support Multicenter Research Networks: Advances from the Clinical Research Networks Participating in PCORnet.
Cope EL, et al. Learning Health Systems. Epub 2022 May 12. doi: 10.1002/lrh2.10313

VaultDB: A Real-World Pilot of Secure Multi-Party Computation within a Clinical Research Network.
Rogers, J, et al. submitted manuscript.

Joining Health Care and Homeless Data Systems Using Privacy-Preserving Record-Linkage Software.
Trick WE, et al. Am J Public Health. 2021 Aug;111(8):1400-1403. doi: 10.2105/AJPH.2021.306304.
PMID: 34464174

Variability in Comorbidites and Health Services Use across Homeless Typologies: Multicenter Data Linkage between Healthcare and Homeless Systems.
Trick WE, et al. BMC Public Health. 2021 May 13;21(1):917. doi: 10.1186/s12889-021-10958-8.
PMID: 33985452

Community-Initiated Research Engagement: Equitable Partnership Delivering Research-Ready Faith-Based Ambassadors.
Johnson R, et al. Prog Community Health Partnersh. 2020;14(2):197-206. doi:10.1353/cpr.2020.0020. PMID: 33416641.

Computable Phenotype Implementation for a National, Multicenter Pragmatic Clinical Trial: Lessons Learned From ADAPTABLE.
Ahmad FS, et al. Circ Cardiovasc Qual Outcomes. 2020 Jun;13(6):e006292. doi:10.1161/CIRCOUTCOMES.119.006292.
PMID: 32466729

Engaging Patients, Clinicians, and the Community in a Clinical Data Research Network: Lessons Learned from the CAPriCORN CDRN.
Tambor E, et al. Learn Health Syst. 2019 Jan 8;3(2):e10079. doi: 10.1002/lrh2.10079.
PMID: 31245603

A Computable Phenotype for Asthma Case Identification in Adult and Pediatric Patients: External Validation in the Chicago Area Patient-Outcomes Research Network (CAPriCORN).
Afshar M, et al. J Asthma. 2018 Sep;55(9):1035-1042. doi: 10.1080/02770903.2017.1389952.
PMID: 29027824

The Building Blocks of Interoperability. A Multisite Analysis of Patient Demographic Attributes Available for Matching.
Culbertson A, et al. Appl Clin Inform. 2017 Apr 5;8(2):322-336. doi: 10.4338/ACI-2016-11-RA-0196.
PMID: 28378025

Surveying a New Multi-Institution Clinical Data Research Network.
Rosenman M, et al. Stud Health Technol Inform. 2017;245:935-939.
PMID: 29295237

Patient-Centered Outcomes Research in Practice: The CAPriCORN Infrastructure.
Solomonides A, et al. Stud Health Technol Inform. 2015;216:584-8.
PMID: 26262118

CAPriCORN: Chicago Area Patient-Centered Outcomes Research Network.
Kho AN, et al. J Am Med Inform Assoc. 2014 Jul-Aug;21(4):607-11. doi:10.1136/amiajnl-2014-002827.
PMID: 24821736

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CAPriCORN Publications Policy

The CAPriCORN publications policy is included in our data use agreement. Please reference CAPriCORN in the acknowledgements of your manuscript. Prior to submission, allow time for CAPriCORN review of any article manuscript, abstract or other scientific product or public disclosure, to ensure that network structure, processes, data, linkage and aggregation methods used in your project are accurately described.

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