CAPriCORN's Response to COVID-19

Patient Community Advisory Committee

Central Hub of Patient and Clinician Engagement

CAPriCORN is committed to incorporating the patient and clinician voice in all aspects of operations to ensure clinical research meets the needs of our communities.

As part of this commitment, CAPriCORN established a Patient Community Advisory Committee (PCAC) to be the central hub of patient and clinician engagement. The PCAC is comprised of patients, community members, caregivers, advocates, and healthcare providers. They meet regularly to provide feedback and recommendations related to CAPriCORN activities and research. Discussion of projects at an early, formative stage leads to research designs that better reflect the needs of patients and providers.

PCAC members are liaisons to the broader communities they represent, facilitating the transfer of information between CAPriCORN and the larger community.

In 2019, PCAC and the Health & Medicine Policy Research Group was awarded a Eugene Washington PCORI Engagement Award for Conference Support. The grant involves planning and implementing the “Elevating the Patient Voice in Research” project, which is designed to increase patient participation in research and to guide future health research priorities.

‘Elevating the Patient Voice in Research’ provides us the opportunity to continue promoting health equity by working with patients to identify research priorities that may influence the future of health care and health outcomes.

‐ Margie Schaps, MPH, Executive Director, Health & Medicine Policy Research Group