CAPriCORN's Response to COVID-19

Elevating the Patient Voice in Research

Increasing Patient Participation in Research

The “Elevating the Patient Voice in Research” project is designed to increase patient participation in research and guide future health research priorities. Made possible through a Eugene Washington PCORI Engagement Award for Conference Support, activities span one year.

Beginning in fall 2019, the CAPriCORN Patient Community Advisory Committee (PCAC) and the Health & Medicine Policy Research Group are partnering with local organizations to gather input from a wide range of community members. The opinions collected from the sessions ultimately will lead to the convening of a one-day conference that will provide a forum for sharing community findings, identifying research priorities, and making a plan to distribute information to a wider healthcare audience.

Collaborators Elevating the Patient Voice in Research

Provide Your Input

Help us elevate patient voices in research by taking 15 – 20 minutes to complete the below survey. Your voice matters!

Take the Survey

Join us for a virtual community listening session on Wednesday, September 9 from 5:30 – 7:00 pm to share your thoughts on the health issues that are most important to you and what is needed to address those issues.

Community Listening Session Flyer

To learn more about our project, email us at or call (312) 372-4292.  You can also read about our work on PCORI’s website at

‘Elevating the Patient Voice in Research’ provides us the opportunity to continue promoting health equity by working with patients to identify research priorities that may influence the future of health care and health outcomes.

‐ Margie Schaps, MPH, Executive Director, Health & Medicine Policy Research Group