Increasing Patient Participation in Research
The “Elevating the Patient Voice in Research” project is designed to increase patient participation in research and guide future health research priorities. Made possible through a Eugene Washington PCORI Engagement Award for Conference Support, activities span one year.
Beginning in fall 2019, the CAPriCORN Patient Community Advisory Committee (PCAC) and the Health & Medicine Policy Research Group are partnering with local organizations to gather input from a wide range of community members. The opinions collected from the sessions ultimately will lead to the convening of a one-day conference that will provide a forum for sharing community findings, identifying research priorities, and making a plan to distribute information to a wider healthcare audience.
Collaborators Elevating the Patient Voice in Research
- Patient Community Advisory Committee
- Health & Medicine Policy Research Group
- The Thapelo Institute, Inc.
- UI Health – UICC Cancer Prevention and Control Patient Brigade
- West Side Institute for Science and Education (WISE)
Provide Your Input
Help us elevate patient voices in research by taking 15 – 20 minutes to complete the below survey. Your voice matters!
Take the Survey
To learn more about our project, email us at firstname.lastname@example.org or call (312) 372-4292. You can also read about our work on PCORI’s website at www.pcori.org/research-results/2019/elevating-patient-voice-research.