Increasing Patient Participation in Research
The “Elevating the Patient Voice in Research” project is designed to increase patient participation in research and guide future health research priorities. Made possible through a Eugene Washington PCORI Engagement Award for Conference Support, activities span one year.
Beginning in fall 2019, the CAPriCORN Patient Community Advisory Committee (PCAC) and the Health & Medicine Policy Research Group are partnering with local organizations to gather input from a wide range of community members. The opinions collected from the sessions and a community-based survey ultimately will lead to a report to share community findings, identify research priorities, and make a plan to distribute information to a wider healthcare audience.
Collaborators Elevating the Patient Voice in Research
- Patient Community Advisory Committee
- Health & Medicine Policy Research Group
- The Thapelo Institute, Inc.
- UI Health – UICC Cancer Prevention and Control Patient Brigade
- West Side Institute for Science and Education (WISE)
As a result of project activities, the project team has assembled findings and recommendations into a final report.
View the Report
To learn more about our project, email us at email@example.com or call (312) 372-4292. You can also read about our work on PCORI’s website at www.pcori.org/research-results/2019/elevating-patient-voice-research.