2022
Stakeholder Engagement Infrastructure to Support Multicenter Research Networks: Advances from the Clinical Research Networks Participating in PCORnet.
Cope EL, et al. Learning Health Systems. Epub 2022 May 12. doi: 10.1002/lrh2.10313
VaultDB: A Real-World Pilot of Secure Multi-Party Computation within a Clinical Research Network.
Rogers, J, et al. submitted manuscript.
2021
Joining Health Care and Homeless Data Systems Using Privacy-Preserving Record-Linkage Software.
Trick WE, et al. Am J Public Health. 2021 Aug;111(8):1400-1403. doi: 10.2105/AJPH.2021.306304.
PMID: 34464174
Variability in Comorbidites and Health Services Use across Homeless Typologies: Multicenter Data Linkage between Healthcare and Homeless Systems.
Trick WE, et al. BMC Public Health. 2021 May 13;21(1):917. doi: 10.1186/s12889-021-10958-8.
PMID: 33985452
2020
Community-Initiated Research Engagement: Equitable Partnership Delivering Research-Ready Faith-Based Ambassadors.
Johnson R, et al. Prog Community Health Partnersh. 2020;14(2):197-206. doi:10.1353/cpr.2020.0020. PMID: 33416641.
Computable Phenotype Implementation for a National, Multicenter Pragmatic Clinical Trial: Lessons Learned From ADAPTABLE.
Ahmad FS, et al. Circ Cardiovasc Qual Outcomes. 2020 Jun;13(6):e006292. doi:10.1161/CIRCOUTCOMES.119.006292.
PMID: 32466729
2019
Engaging Patients, Clinicians, and the Community in a Clinical Data Research Network: Lessons Learned from the CAPriCORN CDRN.
Tambor E, et al. Learn Health Syst. 2019 Jan 8;3(2):e10079. doi: 10.1002/lrh2.10079.
PMID: 31245603
2018
A Computable Phenotype for Asthma Case Identification in Adult and Pediatric Patients: External Validation in the Chicago Area Patient-Outcomes Research Network (CAPriCORN).
Afshar M, et al. J Asthma. 2018 Sep;55(9):1035-1042. doi: 10.1080/02770903.2017.1389952.
PMID: 29027824
2017
The Building Blocks of Interoperability. A Multisite Analysis of Patient Demographic Attributes Available for Matching.
Culbertson A, et al. Appl Clin Inform. 2017 Apr 5;8(2):322-336. doi: 10.4338/ACI-2016-11-RA-0196.
PMID: 28378025
Surveying a New Multi-Institution Clinical Data Research Network.
Rosenman M, et al. Stud Health Technol Inform. 2017;245:935-939.
PMID: 29295237
2015
Patient-Centered Outcomes Research in Practice: The CAPriCORN Infrastructure.
Solomonides A, et al. Stud Health Technol Inform. 2015;216:584-8.
PMID: 26262118
2014
CAPriCORN: Chicago Area Patient-Centered Outcomes Research Network.
Kho AN, et al. J Am Med Inform Assoc. 2014 Jul-Aug;21(4):607-11. doi:10.1136/amiajnl-2014-002827.
PMID: 24821736
The CAPriCORN publications policy is included in our data use agreement. Please reference CAPriCORN in the acknowledgements of your manuscript. Prior to submission, allow time for CAPriCORN review of any article manuscript, abstract or other scientific product or public disclosure, to ensure that network structure, processes, data, linkage and aggregation methods used in your project are accurately described.
Send questions and manuscripts to CAPriCORNpmo@northwestern.edu.
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