Publications

Selected Publications

2025
Change in Address in Electronic Health Records as an Early Marker of Homelessness. Song J, Deng Y, Yang y, Gleason L, Kho AN. PLOS One
March 10, 2025.

2024
Accuracy of ICD-10 Diagnostic Codes for Identifying Housing Instability. O’Brien MJ, Owen A, Langshur S, et al. JAMA Netw Open. 2024; 7(8):e2425919.

High Hospitalization Rates and Risk Factors Among Frail Patients With Cirrhosis: A 10-year Population-based Cohort Study. Hasjim BJ, Mohammadi M, Balbale SN, et al. Clin Gastroenterol Hepatol. 2024 Oct 18:S1542-3565(24)00903-0.

2023
Restrictive or Liberal Transfusion Strategy in Myocardial Infarction and Anemia. Carson JL, Brooks MM, Hébert PC, et al. N Engl J Med. 2023 Dec 28;389(26):2446-2456.

Identification and Assessment of Classification Criteria Attributes for Systemic Lupus Erythematosus in a Regional Medical Record Data Network. Forrest N, Jackson KL, Tran S, Pacheco JA, Mitrovic V, Furmanchuk A, Kho AN, Ramsey-Goldman R, Walunas TL. Lupus Science & Medicine 2023;10:e000963.

2022
Care Fragmentation Is Associated with Increased Chronic Obstructive Pulmonary Disease Exacerbations in a U.S. Urban Care Setting. Young KC, Meza DA, Khuder B, Rosenberg SR, Liu GY, Kruser JM, Reyfman PA, Kalhan R. Am J Respir Crit Care Med. 2022 Oct 15;206(8):1044-1047.

Comparison of Algorithms for Identifying People with HIV from Electronic Medical Records in a Large, Multi-site Database. Ridgway JP, Mason JA, Friedman EE, Devlin S, Zhou J, Meltzer D, Schneider J. JAMIA Open. 2022 May 17;5(2):ooac033.

Stakeholder Engagement Infrastructure to Support Multicenter Research Networks: Advances from the Clinical Research Networks Participating in PCORnet.
Cope EL, et al. Learning Health Systems. Epub 2022 May 12.

VaultDB: A Real-World Pilot of Secure Multi-Party Computation within a Clinical Research Network.
Rogers, J, et al. submitted manuscript.

2021
Joining Health Care and Homeless Data Systems Using Privacy-Preserving Record-Linkage Software.
Trick WE, et al. Am J Public Health. 2021 Aug;111(8):1400-1403. doi: 10.2105/AJPH.2021.306304.
PMID: 34464174

Variability in Comorbidites and Health Services Use across Homeless Typologies: Multicenter Data Linkage between Healthcare and Homeless Systems.
Trick WE, et al. BMC Public Health. 2021 May 13;21(1):917. doi: 10.1186/s12889-021-10958-8.
PMID: 33985452

2020
Community-Initiated Research Engagement: Equitable Partnership Delivering Research-Ready Faith-Based Ambassadors.
Johnson R, et al. Prog Community Health Partnersh. 2020;14(2):197-206. doi:10.1353/cpr.2020.0020. PMID: 33416641.

Computable Phenotype Implementation for a National, Multicenter Pragmatic Clinical Trial: Lessons Learned From ADAPTABLE.
Ahmad FS, et al. Circ Cardiovasc Qual Outcomes. 2020 Jun;13(6):e006292. doi:10.1161/CIRCOUTCOMES.119.006292.
PMID: 32466729

2019
Engaging Patients, Clinicians, and the Community in a Clinical Data Research Network: Lessons Learned from the CAPriCORN CDRN.
Tambor E, et al. Learn Health Syst. 2019 Jan 8;3(2):e10079. doi: 10.1002/lrh2.10079.
PMID: 31245603

2018
A Computable Phenotype for Asthma Case Identification in Adult and Pediatric Patients: External Validation in the Chicago Area Patient-Outcomes Research Network (CAPriCORN).
Afshar M, et al. J Asthma. 2018 Sep;55(9):1035-1042. doi: 10.1080/02770903.2017.1389952.
PMID: 29027824

2017
The Building Blocks of Interoperability. A Multisite Analysis of Patient Demographic Attributes Available for Matching.
Culbertson A, et al. Appl Clin Inform. 2017 Apr 5;8(2):322-336. doi: 10.4338/ACI-2016-11-RA-0196.
PMID: 28378025

Surveying a New Multi-Institution Clinical Data Research Network.
Rosenman M, et al. Stud Health Technol Inform. 2017;245:935-939.
PMID: 29295237

2015
Patient-Centered Outcomes Research in Practice: The CAPriCORN Infrastructure.
Solomonides A, et al. Stud Health Technol Inform. 2015;216:584-8.
PMID: 26262118

2014
CAPriCORN: Chicago Area Patient-Centered Outcomes Research Network.
Kho AN, et al. J Am Med Inform Assoc. 2014 Jul-Aug;21(4):607-11. doi:10.1136/amiajnl-2014-002827.
PMID: 24821736

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CAPriCORN Publications Policy

The CAPriCORN publications policy is included in our data use agreement. Please reference CAPriCORN in the acknowledgements of your manuscript. Prior to submission, allow time for CAPriCORN review of any article manuscript, abstract or other scientific product or public disclosure, to ensure that network structure, processes, data, linkage and aggregation methods used in your project are accurately described.

Send questions and manuscripts to CAPriCORNpmo@northwestern.edu.